Saturday, April 11, 2009

Day +24

Sorry I've been AWOL the last few days, I wouldn't have time to tell the whole story. They finally took me off the TPN, no sooner than they did that. They started sending up all of the specialist. At first they suggest that it may be VOD, and they they thought that it may be related to my Liver. They even suggested taking a biopsy of my liver. I've had a doppler ultrasound, a CAT-SCAN, they've done another EKG, and an x-ray, then they they did a biopsy of my lower arm that came back negitive for GVHD. So they put me back on the feeding line (TPN). My kidneys and my liver are currently failing, so on Monday they have me scheduled for a Biopsy of the liver, and I may have to go on dialisis to help my kidneys out.

Within 4 days last week I have gained 28 pounds (in less than a week), my legs are swollen My eyes are yellow and it looks like someone punched me right in the eye because I have a bruise all around it. If I have to go to the bathroom I have to call for a nurse to help me up off of the bed. They are going to take me off of the TPN tonight and see if I can get some food down. I currently look like I'm 8 months preganat, but it is just all from the swelling.

Today after Rick left to go home my Doctor came in to go over some results, and that they would be doing a biopsy of my liver. She asked me how I was feeling, I said to be honest I'm really scared. She said yeah we pretty scared too. Thank you...??? Nice reassurance. I am in alot of physical pain. Oh and did I mention up until about Wednesday they were talking about sending me home.

Veno-occlusive disease (VOD)

This is a complication that can happen during the first 30 days after transplantion from the high doses of chemotherapy that you recieve. VOD affects the liver and makes it more difficult for your liver to function properly. Weight gain or fluid collections in your abdomen, abdominal pain, and an increase in your total bilirubin are all signs that you will be monitored for during transplation. VOD can be mild or severe and although some patients recover from this complication, VOD can be fatal.

Please keep my family in your prayers.

Wednesday, April 08, 2009

Day +20

I'm going to do the very best that I can as far as posting today. I've been given so many different medications, that I can hardly stay awake.By the way Joe thanks for the advice, it has definitely been worth it, and has made my time here go so much faster.

All yesterday afternoon, they pushed fluids through me, So much so that my stomach is very Swollen. The doctor last night said that everything else was looking really good. This morning When I uncovered my feet my left foot was HUGE!!! Plus I have some terrible rashes that are out of control. They are giving me some sort of water pills through my I.V. so far it's not doing it's job.

I'll be very honest, I'm scared. They have no idea whats going on, So they sent me down for a CAT-SCAN, and a Doppler ultra sound. That woman liked to have killed me. She pushed that Doppler deep in my groin, and deep into my legs. All I can say is, MAN that really hurt, I was crying like a baby when she was finally done.

Well the doctor just left and she is going to send me back downstairs to have have more tests done. The rashes seem to be GVHD related (hopefully that will be ok, as long as it stays mild.)
Needless to say I'll probally not be able to go home this weekend.

Tuesday, April 07, 2009

Day +18

Well we finally got my nose to stop bleeding.They want me to stop getting fed with the TPN. So when they unhook me tonight, they won't be putting it back on. They want to see how I handle food on my own without any meds. So sometime in the next few days I have to get Diabetic education so I can do my own insulin shots when I get out. The doctor said that they are hoping on on sending me home by this weekend.

Today is Rick and my anniversary, we've been married for fourteen years. Um... it's safe to assume that I didn't realize that I was still going to be in the hospital, for the big day.

I have been in and out of it all day, so needless to say each and every time I was holding a glass of water I fell asleep, and only woke up when I felt the water dumping out all of me. The nurses were not mad because they had to keep changing the bedding, but instead they found it very funny. Mary my nurse for today took my blood pressure and when she went to tear the cuff off of me I about jumped out of my skin, because I had already fallen asleep sitting straight up.

Monday, April 06, 2009


What kind of drugs do they give to cancer patients? I have never been high my whole life, wouldn't even concider it. These past two days I have definately been high. I can't keep my eyes open, and when I do wake up I find myself takling out loud. I called Rick I can't tell you how many times this morning. One time he asked me, "What are you talking about? I said, I know you saw my mother she was supposed to go to the hospital, why won't you tell me whats wrong with her." He said April what in the world are you talking about.

Then I had several nurses come in and they knew that I was out of it, so they were all laughing at me. (Question: Is that professional?) I'm just kidding I would laugh my butt of if I witnessed something like that.

Finally around 1pm I woke up. my nurse came in and asked if she could take some blood for my glucose test, I looked her straight in the eye and said, nope! She just stood there dumbfounded. I said, I was just kidding. At least I got her back for laughing at me this morning.

The gel that they put in my nose is supposed to melt within 48 hours. Then I'm going to try to eat tomorrow, the faster that I can eat, and walk the sooner I can get out of here.

Sunday, April 05, 2009

Day +16

Well last night you guessed it I fought with a bloody nose, this morning it had finally stopped. So this morning I got ready and went for a walk, I walked the hallways twice. Went back to my room sat in the chair and then I decided to take a nap I sat down on the bed put my water on my side table, looked down and then my nose started gushing again. I called for the nurse and we had to pack my nose again, and again, and again. FINALLY they decided to call down the Ear Nose and throat specialist. When he came up he took this huge thing out of his bag it looked like a giant pair of tweezers. He ended up pulling out two huge blood clots out of each side of my nose, and two huge blood clots out of the back of my throat. They ended up putting some sort of gel up both sides of my nose it will take two days for that medication to melt. So for the next few days I have to eat, drink and, breathe through my mouth.

My aunts ex-husband, and father to two of her children died this morning, he had brain cancer, and told him that he had 24-48 hours to live. My aunt Robin had a stroke when she was 44 (she'll be 51 in June). So she has been living with my mom for the last few months, because she is paralyzed on one side of her body, she still has seizures, and strokes. So when she found out that Pete was dying it really hit her hard, because they had still remained friends over the years.

Other than that every thing seems to be going ok. They are looking at sending me home later this week.

Saturday, April 04, 2009

Day +15

Last night I was up almost all night for, you guessed it a bloody nose. We finally got it under control in time for Rick to visit, then he left to go pick up Ricky and Breanna. Not too long after that my bloody nose was back. (They gave me platelets at 5am) within a few hours it was back under control.

I called mom to see how the kids were last night. She said that they were fine, but they were still there, and my husband was asleep on her couch. Around 1:30 I called her again and she said that Rick was still asleep. I had her to wake him up so that I could talk to him. He finally got up and then he text me a picture of Ricky and Breanna with their new bunny. I called him back to see if it was a real rabbit or not. My mom and her husband got them a rabbit for Easter. I told her that they couldn't bring it home, that's one of the instructions they gave me about coming home. We cannot have a new animal for a year. She said that she knew that, and they were going to keep it at their house for the kids.

After that phone call I was lying down, I sat up and my nose started gushing blood again. This time it wouldn't stop. They had to use a suction tube to get the blood from the back of my throat. About two hours later I was throwing up straight blood. The nurse called the Doctor on call, and they gave me a second bag of platelets, and packed both sides of my nose. FINALLY about 1 1/2 hours later we got the bleeding to stop. I'm so exhausted.

The good news is my White Blood Cell count if finally starting to come up it's 3.1 today, and I was just given my last neuprogen shot. The doctor said that I need to start working on getting solid foods down so that they can get off of this TPN. Because it looks like next weekend I'll be going home. According to the doctor, platelets are the last count to come back up. When I first go home I'll have to come back up to the BMT unit so they can give me platelets, and red blood cells as needed.

Friday, April 03, 2009

Day +14

I had a rough night last night, I had a nose bleed ALL night long. Actually it still has not stopped, but they have already given me platelets, and I'm currently receiving one of two bags of blood.

A friend of mine stopped by last night (Stacy) we used to work together. She brought my Christmas present that she had never gotten around to giving me, a really nice scarf, two hats, and a pair of gloves. At least I won't have to buy any new ones this fall. She also brought me a People magazine (YEAH) although I have to read it in segments, most of the time I can't keep my eyes open long enough to read anything.

The nurses just told me that my white blood cells are coming up nicely so I only have to take the Neuprogen shots for two more days!! I can't wait those shots hurt so bad, I dread taking them.

Thursday, April 02, 2009

Day +13

Finally: My counts have finally started to come up. Until last Friday my white blood cell count was <.2, Saturday it went up to .4, Sunday and Monday it went back down to <.2, Tuesday it was .2, Wednesday it reached.4 again, and today I have 1.0. Which means I have 1000 white blood cell counts. I have to have 2000 several days in a row before they let me go home.

The rest of the counts are:
Red blood cells - 8.0 (when it gets under 8 I have to have a Blood Transfusion.
Platelets - 27 (I've received platelets both yesterday, and the day before)

I'm feeling much better, still having issues with bloody noses. This morning when Rick came to visit we walked the hallways twice, he had to push my I.V. pole for me because they are making me walk with a walker for now, until I get more stable when I walk. All of my doctor's and nurses commented how well I was doing. I'm making good progress according to them. Walking with a walker is a little odd, but it was much easier.

When Rick came up for his visit this morning he said that I'm starting to get some color back onto my face, even the nurses have made some comments to that effect today. Up until now I've been a gray color with red, and black circles around my eyes.

Stacy a girl that I used to work with is coming up to visit this evening. I'm pretty excited, I've not had too many visitors since I've been up here. It does get lonely.